Drs. Franklin and Nichols and colleagues have a new paper published in the Journal of Patient Experience that explores cancer patient perspectives on the sharing of de-identified health data for research purposes including both data from medical records and mobile applications.
Using survey data, Franklin and Nichols found that participants were largely willing (71%) to share de-identified medical data and were most motivated (88%) by a desire to help other cancer patients. Patients were less likely to be comfortable sharing mobile application data (34%). More details can be found at; https://journals.sagepub.com/doi/10.1177/2374373520923837