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New Research: PhD Student Ware and Assistant Professor Cagle Co-author "Informal Caregiving Net

Orrin Ware

PhD Student Orrin Ware (shown here) and Assistant Professor John Cagle have their new research, "Informal Caregiving Networks for Hospice Patients With Cancer and Their Impact on Outcomes: A Brief Report," published by the American Journal of Hospice and Palliative Medicine.

ABSTRACT This prospective study investigates informal care networks and their impact on hospice outcomes. Primary caregivers (N = 47) were the main source of data from 2 time points: within a week of enrollment in hospice and bereavement. Data were also collected from 42 secondary caregivers. Intraclass correlation coefficients (ICCs) determined correspondence between primary and secondary caregivers regarding informal care network size. Correlations were used to test associations between variables. Nonparametric paired sample tests were used to analyze change in anger and guilt. The ICC found poor correspondence (−0.13) between primary and secondary caregivers’ network descriptions. Correlational analyses found a strong/moderate negative association between quality of dying (QOD) and grief (r = −0.605, P < .05). Study participants reported increased anger (0.4, P < .05, range 1-5) and guilt (0.4, P < .05, range 1-5), particularly among caregivers with high levels of support. Findings suggest that improving QOD may facilitate postdeath coping for caregivers.

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